D-blog week Day 1: Share and Don’t Share

I am thrilled to finally start my blog this week, which is the 4th annual Diabetes Blog Week! I’ve been tossing around the idea for quite some time, but this organized event of diabetic-blogging really spurred me into action. Today’s topic: Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?

How wonderfully coincidental that I had my 3 month checkup with my endocrinologist this morning! Endo Appointment NotesNow, no judging any of his notes, ya’ll. I was honest (….except for maybe the severe hypo thing, but that 45 last week wasn’t TOO severe, right?) and he types fast while actually looking me in the eyes to show he’s paying attention, so I forgive him some of the typos. He is generally a good listener, and I’ve been seeing him for over 13 years, so we have built up a nice rapport. I always ask him about his kids, he asks me about my family, asks me about any changes or concerns I may have with my health.

What I wish he could see:
How much monthly, daily, hourly, minute-to-minute work I do to keep my blood sugars in check. Managing all my “numbers” literally feels like another job. My HbA1c was a 6.3, and I’m thrilled I’ve kept it in the lower 6 range for close to 3 years now, and even dipped into the 5’s when I was pregnant. But he always asks, “did you bring me logs today?” knowing that most of the time, I will say, “No, I didn’t have time to print them out.” (Notice how he says I “forgot” to bring in my logs in his notes. He’s just being nice.) He gives me a sly and slightly disappointed look sometimes, but tells me that if I am having trouble reining in sugars at certain times of the day, to please send him logs and he’ll be happy to help. I hope he “gets it” and realizes I’m not being defiant, it’s just that most days,  I just don’t feel like doing ONE MORE THING around tracking all my diabetes numbers. I will eventually bring in logs for him, at least once a year. Promise.

What I hope he never sees:
A trend in my logs or lab work that speaks to some other medical issue rearing it’s ugly head -diabetes caused/related or not. We know my cholesterol is running a smidge high, and has been for quite some time, but until I’ve decided I’m done trying to have babies, we are laying off the statins. I have only just started to feel like I control my diabetes instead of it controlling me. I’m not ready to give up that comfortable place and deal with something else added on. Just not yet, please.

I am working hard to maintain – and even better – my health as it relates to diabetes, weight, exercise, and everything. But it’s a constant battle. Some days I win the current battle, and some days I lose, but in the end, I really hope I can win the war and live a long, mostly healthy, and enjoyable life.

8 thoughts on “D-blog week Day 1: Share and Don’t Share

  1. I cringe at the word: “denies” – it’s a little harsh, but I read into things like this a lot more than most. And welcome to the DOC Blogosphere – glad you’re here!

    • I know what you mean! I don’t like the implication that I might be in “denial” of something. Thanks so much for the welcome and the comment – I’m still learning how to “approve” things and understand how WordPress works, so this is all helpful!! ~Rhonda

  2. He can really just download all that info from the pump. After years of “forgetting” to bring my records, I moved to another state and switched endos. The new doc borrowed my pump for a mere minute, and when he came back, the pages upon pages of data he had pulled out from it was astounding.

    And I’ll second the above comment — welcome to the d-blogosphere!

    • Thanks, Scott!!! I think, despite how much I like my endo, he’s a bit lazy and/or he doesn’t have the program or time to download the logs while I’m there. It’s something we’ll be working on!!

  3. I wish it was a requirement for endocrinologists to have the capability to download all meters, pumps and CGMs. It literally takes me all day to print off all my reports.. And a lot of ink. I went to endo Tuesday, we are a1c twins!

  4. Wow, I am jealous of your A1C results. I’m trying so hard to get mine below 7 that thinking about having an A1C in the 5 range seems unimaginable! Congrats to you! Also, it’s great that you have found a good endocrinologist.

    • It is a TON of work keeping it in the 6’s. Do you have a CGM? Because I totally could NOT do it without it. Thanks for the comments and encouragement. Right back at you!!! I believe in you – you can do it! (isn’t that some crazy quote from a movie??)

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